Happenings

It's been awhile, how are all of you? We are doing alright. Lots going on. Nathan started home schooled preschool this Monday. It is going great. I am just amazed at how smart he is. Nora is picking up quite a bit herself. It has been tons o fun doing the lesson plans and activities for them. We will do two years of preschool at home and then go to regular kindergarten pending on decisions made in the next few months. Which brings me to my next bit of news.
At the end of September Dan and I will be going to Cincinnati Childrens Hospital to discuss our options for a bone marrow transplant for Dan. As some of you know Dan, my husband, has a genetic condition called XLP. That is the abbr. name, I cannot spell or pronounce the full name. Basically he cannot fight off certain viruses such as the anode virus (the common cold) and mono. This makes it really really hard for us to have much of a social life or for me to be able to send my kids to school. A BMT would reverse his condition and in time would have a more normal life. Like everything there are pros and cons nothing is decided yet. This is strictly an informational visit. We are going to Cincinnati because we have contacted three other hospitals that don't want his case. It is very rare to have someone with his condition and still be alive at his age. The other hospitals just feel as though they do not have the staff or knowledge on his case to be the best option for us. This is very overwhelming for us. there is so much information and choices to be made. Please keep our family in your prayers. Hopefully I can find time to start posting more soon. Sorry for those of you that this is our only form of updates. It has been a crazy couple of months! I will try to do better.